A Family Companion’ is designed for parents and carers of babies, children and young people with a life-limiting condition or illness.

This resource aims to prepare you for the situations and challenges you may face with regards to your child’s illness.

The information seeks to support parents and carers in their role as champions and decision-makers for their child, with each section exploring stages of your child’s illness and what you might expect.

The resource is also helpful for extended family members, close friends and your support network to read and understand the difficult issues that may arise after the diagnosis or recognition that your child has a life-limiting illness.

You can also download the booklet HERE.