National Register of Palliative Care Consumers and Carers
The National Register of Palliative Care Consumers and Carers gives a voice to those living with a life-limiting illness, people who are receiving palliative care, their family, carers and the palliative care volunteers who support them. The ultimate goal is to improve the quality of, and access to, palliative care throughout the country.
The National Register was established in 2018 as a pathway to gather and share the experiences of palliative care consumers and carers. By establishing the National Register we endeavour to build a collective body of knowledge and a way to share these experiences to inform, improve and guide the development of Australia’s palliative care policies and services across settings and sectors.
In palliative care policy contexts consumer and carer involvement has been shown to:
- Demystify palliative care
- Increase public awareness of, and support for, palliative care services
- Assist palliative care services to better understand and respond to the needs of consumers, especially under-served populations.
What is the National Register?
The National Register is a group of people with a lived experience of palliative care from across Australia. Our representatives have a varied range of experiences with palliative care and are able to use their lived experience and communication skills to share their stories and provide input into public policy and service delivery related to palliative care in Australia.
The National Register is designed to foster opportunities for consumer and carer engagement at a national or jurisdictional level in a supported environment. PCA is dedicated to supporting members of the National Register by best practice and has adopted principles of quality consumer and carer participation based on best practice and recommendations in global literature on the subject.