Joseph Stewart loves music, people and nothing better than bouncing over the rough edges of his family property in Ballarat in his wheelchair. Like most seven-year-olds he is curious about the world around him and eager to explore it. This film tells his and his family’s story of working with palliative care teams who provide ongoing support to them. Fiona Stewart, Joseph’s mum, describes palliative care as their ‘safety net’. The family has accessed sibling support, respite care and Mum’s pamper days, as well as support to prepare advanced care plans. Joseph’s Story reminds us that paediatric palliative care is long-term care with support for the whole family – sometimes lasting from birth to 18 years.
Palliative Care Australia is very grateful to the Stewarts for allowing us to share their story.