National Register of Palliative Care Consumers and Carers

National Register of Palliative Care Consumers and Carers

  • Christine Hofmeyer

    Representative

  • Debra Letica

    Representative

  • Frances Logan

    Representative

  • Harpreet Kalsi-Smith

    Representative

  • Luisa Tiatuha

    Representative

  • Jane Marshall

    Representative

  • John Chapuis

    Representative

  • John Clements

    Representative

  • Nicola Champion

    Representative

  • Rob Hill

    Representative

  • Rosemary Dillon

    Representative

  • Simon Menelaws

    Representative

  • Simon Waring

    Representative

Palliative Care Australia has established a National Register of Palliative Care Consumers and Carers to give a voice to those living with a life-limiting illness, people who are receiving palliative care, their family, carers and the palliative care volunteers who support them. The information below outlines more about the National Register, whether you are an interested individual seeking to be involved or an organisation seeking a representative.

Many health organisations seek interested people (consumers and carers) who have direct experience in palliative care to improve their service delivery. By establishing the National Register we endeavour to build a collective body of knowledge and a way to share these experiences to inform, improve and guide the development of Australia’s palliative care policies and services across settings and sectors. We want personal experiences to matter to improve services for any one who may require palliative care.

In palliative care policy contexts consumer and carer involvement has been shown to:

  • Demystify palliative care
  • Increase public awareness of, and support for, palliative care services
  • Assist palliative care services to better understand and respond to the needs of consumers, especially under-served populations.

What is the National Register?

The National Register is a group of independent people with a lived experience of palliative care from across Australia. Our representatives have a varied range of experiences with palliative care and are able to use their lived experience and communication skills to share their stories and provide input into public policy and service delivery related to palliative care in Australia.

The National Register is designed to foster opportunities for consumer and carer engagement at a national or jurisdictional level in a supported environment.  PCA is dedicated to supporting members of the National Register by best practice and has adopted principles of quality consumer and carer participation based on best practice and recommendations in global literature on the subject.

If you are an organisation looking for a representative, you can meet our current carer and consumer representatives. This link provides you a biography of representatives, their skills and interest in end-of-life care. Meet our carer and consumer representatives below.

The Engaging a Consumer Representative Fact Sheet can help you find out more about engaging a consumer, carer or volunteer working in palliative care from the PCA’s National Register. The Fact Sheet outlines how representatives can contribute to a projects, PCA’s role, payment and how to proceed to engage a representative. Engaging a Consumer Representative Fact Sheet.

For more information on the above, contact Palliative Care Australia on 02 6232 0700.

Read more here if you are interested in becoming a consumer and carer representative.