Paediatric Palliative Care Resources for Families and Health Professionals

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Paediatric Palliative Care Resources for Families and Health Professionals

Paediatric Palliative Care Resources for Families and Health Professionals (aka the ‘Purple Folder’) is a resource containing the following booklets and information sheets to help families as they care for an infant, child, or young person with a life-limiting condition and those health professionals who support them. This resource contains:

Booklets

  • A Family Companion for Paediatric Palliative Care booklet
  • Siblings & Grief booklet
  • Teachers supporting students at school

Information Sheets:

  • Care Team Contact List
  • Decision Making
  • What to do if your child dies at home
  • What to expect in the final days
  • Where will my child be cared for?
  • Looking after yourself while caring for your child
  • Selecting a funeral director
  • Supporting someone who is grieving the loss of a child
  • Care symptom management plan
  • Supporting your partner

You can download the booklet here :
Paediatric Palliative Care Resources for Families and Health Professionals

You can also order a printed copy here :

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We recognise and acknowledge those who are working through Sorry Business, Sad News, grief and bereavement and offer our condolences and support.

Aboriginal and Torres Strait Islander peoples are advised that this website may contain images, videos and voices of people who have passed on. Some of the content and topics covered might also cause distress. You are welcome here, and we want you to feel safe and take care.

If you find that you need support please reach out to 13YARN on 13 92 76, Grief Australia, Grief Line on 1300 845 745, or Lifeline on 13 11 14.

Palliative Care Australia is located in Canberra. We acknowledge the traditional custodians of the surrounding land and waters, the Ngunnawal and Ngambri Peoples and pay our respects to Elders past and present. We extend that same respect and acknowledge the continuing cultures and contribution of Aboriginal and Torres Strait Islander Peoples across Australia.

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