Shaping the Future of Paediatric Palliative Care Project

Back to all Projects

Shaping the Future of Paediatric Palliative Care Project

Welcome to the Shaping the Future of Paediatric Palliative Care Project! A project supporting families and health care professionals.

The Project will encompass a comprehensive approach to awareness-raising, advocacy, and inclusive involvement of those affected by life-limiting illnesses and those from underserved populations in the planning, and evaluation of activities.

Together with PaPCANZ we are taking the Paediatric Palliative Care National Action Plan to new heights! The National Action Plan (NAP) has been our guiding star, charting a course for a brighter future in paediatric palliative care.

The Shaping the Future Project is focusing on the national quality and access elements of the NAP with four key actions:

  • Support healthcare providers through structured communication training to initiate difficult conversations with empathy and compassion.
  • Develop and implement Paediatric Palliative Care Clinical Guidelines to support best practice and holistic care.
  • Develop and implement an optimum Transition Pathway between paediatric and adult palliative care services.
  • Develop strategies that overcome barriers and improve timely referral to paediatric palliative care.

What's also included in our Plan?

Maintaining the Paediatric Palliative Care website to ensure children and young people with life limiting illnesses, their families and the medical and support staff who care for them have a ‘go to’ place for trusted resources, information and research. Additionally, it includes the adaptation of resources to cater to the specific needs of diverse communities, ensuring equitable access to vital information.

To achieve our objectives, it's imperative to foster the partnership between paediatric palliative care specialist teams, allied health professionals, primary health and community providers, researchers, and various specialists including oncologists, neurologists, geneticists and endocrinologists.

The project approach is robust, involving extensive research, genuine co-design, fostering collaboration and active listening.

To drive innovation and ensure the project's success we will trial and evaluate new tools, share stories and knowledge through surveys and working groups.