Paediatric Palliative Care Resources for Families and Health Professionals (aka the ‘Purple Folder’) is a resource containing the following booklets and information sheets to help families as they care for an infant, child, or young person with a life-limiting condition and those health professionals who support them. This resource contains:

Booklets

• A Family Companion for Paediatric Palliative Care booklet
• Siblings & Grief booklet
• Teachers supporting students at school

Information Sheets:

• Care Team Contact List
• Decision Making
• What to do if your child dies at home
• What to expect in the final days
• Where will my child be cared for?
• Looking after yourself while caring for your child
• Selecting a funeral director
• Supporting someone who is grieving the loss of a child
• Care symptom management plan
• Supporting your partner

You can also download the booklet: