From Palliative Care Australia Stories about living, dying and Palliative Care
23 May 2018
Ian Venamore used to describe himself as a very active person. He enjoyed outdoor activities, playing sport and was quite the handy man around the house. It was in 2003 when he began to experience subtle symptoms which belied the seriousness of the condition he now lives with. Ian was diagnosed with Chronic Obstructive Pulmonary Disease (COPD) which is a progressive disease of the lungs causing shortness of breath. Ian shares his personal journey with COPD as he discovers the importance of knowing your body and understanding the limits of your condition and health needs.
22 May 2018
Volunteer Maddie spends quality time with Marco, who has a rare genetic condition, and his younger brother Lucas, improving life for the whole family. Marco is 13 years-old and lives with a very rare, life-threatening condition that has resulted in severe epilepsy and an intellectual disability.
21 May 2018
As a practising intensive care specialist for over 21 years, I have had the privilege to be with many patients and families at one of the toughest times in their lives. Tough for multiple reasons not least someone’s life has just been placed on a knife edge within the confines of a noisy, frenetic intensive care unit. This experience can be terrifying, confusing, bewildering with a strong sense of losing control over decisions including life and death.
17 May 2018
Molly Carlile AM is a multi-award winning death and grief specialist, palliative care activist, author and is the CEO of Palliative Care South East in Victoria. Read her special column about ‘what matters most?’ to celebrate National Palliative Care Week.
12 May 2018
Not all of us will be able to celebrate Mother’s Day in the way we wish we could. Some people will experience the day without their mum or child for the first time and others will struggle through the day like they have for many years. While the day will bring different emotions for each individual, it is important to grieve your loss and take the time to cherish the memories.
11 May 2018
International Nurses Day (Saturday 12 May) recognises the vital role nurses play in the delivery of high quality care to all patients and their families. The theme for this year, ‘Nurses a voice to lead – health is a human right’, empowers nurses to lead by example to influence health policy, planning, and provision. Palliative Matters sat down with Kate to discuss her career and the importance of recognising and celebrating International Nurses Day.
2 May 2018
The debate about assisted dying in Victoria at the end of 2017 heightened interest in palliative care with opponents of assisted dying arguing for improvements in palliative care as the alternative. Many submissions to the Legislative Council inquiry into end-of-life care recounted stories of inadequate palliative care – of failures of access, failures of implementation, failures of knowledge about what can or should be done to relieve pain or distress, and failures of treatment.
23 April 2018
Doctor Ursula Sansom-Daly from the University of New South Wales was recently awarded a research grant from the HCF Research Foundation to focus on improving end-of-life outcomes for young people at end-of-life.
6 April 2018
Grief is a feeling you don’t get over or recover from. You learn to live with it and adjust to a new reality. For this inspiring mum, the grief of losing her daughter fuelled her desire to help other families in the toughest situations of their life.
26 March 2018
Prognosis can be a complex component of patient care for doctors and nurses, alongside the difficult task of discussing this with people with a life-limiting illness. With so many factors to consider for such a […]
- Frail elderly put new pressure on prisons to provide palliative care
- One third of elderly patients receive futile treatment before they die
- Symbolic works created with ink-filled syringe capture life and offer therapy
- The most intimate thing I’ve done in my life: Kylie’s story
- Vicarious trauma: a young nurse shares her experience