From Palliative Care Australia
Stories about living, dying and Palliative Care
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Nursing student’s passion for palliative care
1 November 2018
For many undergraduate nursing students, palliative and end-of-life care is an area of study that students tend to shy away from. For 20 year old nursing student, Cassidy Wilson, her dedication and desire for helping people and their families at the end of life has just begun.
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Young carers need to take a breather
18 October 2018
My message to young carers is this — in caring for others, please don’t forget to care for yourself. It is easy to become so completely absorbed with your caring duties that you neglect your own health and wellbeing, lose contact with friends or let your career or study suffer.
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The woman turning children’s disabilities into super powers
17 October 2018
“Disability is not a deficit within the person, but shows up the deficits in our culture and society that does not fully accept, encourage and celebrate humanity, no matter what it looks like. The unique and distinctive abilities of this amazing group of children can act as an inspiration for all of us, to encourage each other.”
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Bear Cottage was our lifeline
13 October 2018
When Max was diagnosed with Batten Disease, we had no idea what his future held. All we knew was that our little boy was going to die.
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The strength of community
12 September 2018
We sometimes find ourselves on a long and difficult journey. Whether we are a patient, carer, family member or friend, illness takes a toll on everyone involved. Often people reach out to help us but often we don’t accept support, even when we need it. To help change this situation, Andrea Grindrod from La Trobe University is encouraging families and the community to work together.
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17 year old student undertakes research to understand the Australian palliative care system
30 August 2018
Nearly every day we are confronted with death. We experience it personally, hear about it on the news, watch it in the movies and read about it in books and yet still, talking about death and dying with our loved ones remains a taboo subject. Conversely for 17 year old school student, Jemma Schusterbauer, personal experiences has made her eager to learn more about the end-of-life and understand the palliative care sector – an area she once found very confronting.
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Lucinda Barry is Dying to Talk during DonateLife Week
1 August 2018
For many people in palliative care, tissue and organ donation (e.g. corneal donation) is still a possibility and should be discussed as part of end-of-life conversations. Chief Executive Officer of Organ and Tissue Authority, Lucinda Barry, took some time this week to speak with Palliative Matters to discuss some of her end-of-life wishes using the Dying to Talk Discussion Starter.
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Memories are timeless treasures of the heart
25 July 2018
I witnessed an inspiring and heartfelt moment as day resident, Larry Andrews, walked into the community hall at Villaggio Sant’ Antonio aged care facility and was hailed by friends, family, former work colleagues and other fellow residents. There was a standing ovation as Larry entered and made his way to the front of the room in awe of all the people that had come to see him.
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Why Opioid Medicines are Important for Improving Quality of Life in Palliative Care
18 July 2018
With more understanding of how to manage pain using opioid medicines, the palliative care community can set an example for the rest of Australia to follow. Opioid medicines will always carry a risk of side effects and other issues – but by using a balanced approach, we can choose to manage that risk carefully, holistically, and with greater compassion.
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Sarah Richards of Marrawuy Journeys is Dying to Talk
11 July 2018
This NAIDOC week, Sarah answers questions from the Dying to Talk Aboriginal and Torres Strait Islander Discussion Starter which aims to assist Aboriginal and Torres Strait Islander people to start thinking about what would happen if they were so sick that someone else had to make decisions for them.
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