Paediatric Palliative Care

Paediatric palliative care is more than you think. It is about improving the quality of life of infants, children and young people diagnosed with a life-limiting condition and supporting those who care for them.

The philosophy of paediatric palliative care is to provide holistic care whereby families and multi-disciplinary health care professionals work collaboratively including alongside treatment aimed at cure.

Palliative care for infants, children and young people involves a diverse range of conditions, symptoms, and experiences. Paediatric palliative care acknowledges these differences and provides individualised, holistic care that is focused on the physical, emotional, social, financial, cultural, and spiritual needs of the child and family.

This website has been co designed with health care professionals, support organisations, and families to provide quality information, and resources about paediatric palliative care, as well as a National Service Directory in one easily accessible location.

It is essential to have information about paediatric palliative care that caters to the needs of specific groups. To address these differing needs, we have developed dedicated sections for:

  • health professionals,
  • children, families/carers and
  • young people.

This website will continue to evolve over time to provide new and updated information and resources.

  • Parents, carers, and young people are the experts

    We need your advice and involvement to ‘shape the future of paediatric palliative care. Complete our expression of interest now…

    Register Now
  • New Communication Course

    A passionate group of bereaved parents and health professionals have come together to create a self-guided, eLearning program.

    Learn More
  • Discussion Starter Cards and Yarning Companion

    These resources support conversations with Aboriginal and Torres strait Islander people about end of life preferences.

    Learn More

Each infant, child, young person and family is unique, and everyone’s paediatric palliative care experience will be different.

The role of families and caregivers is central to the care provided.

Read more

The provision of high quality paediatric palliative care for every infant, child, young person and their families involves collaboration between the child, family, caregivers, and multidisciplinary health care professionals.

Read more

Being on the cusp of adulthood is a unique time of life, a time to figure out who you are and what’s important to you. And if you’re also navigating a serious, life-threatening or life-limiting condition, you probably have things on your mind that are very different to a lot of your friends.

Read more

Each infant, child, young person and family is unique, and everyone’s paediatric palliative care experience will be different.

The role of families and caregivers is central to the care provided.

Read more

The provision of high quality paediatric palliative care for every infant, child, young person and their families involves collaboration between the child, family, caregivers, and multidisciplinary health care professionals.

Read more

Being on the cusp of adulthood is a unique time of life, a time to figure out who you are and what’s important to you. And if you’re also navigating a serious, life-threatening or life-limiting condition, you probably have things on your mind that are very different to a lot of your friends.

Read more

The Paediatric Palliative Care National Action Plan Project received grant funding from the Australian Government as part of the Supporting Children with Life Threatening Medical Conditions and their Families 2019 election commitment.