Paediatric Palliative Care National Action Plan Project
Banner artwork “Singing Sunflowers” has been provided by Laura Hare
The Paediatric Palliative Care National Action Plan project received grant funding from the Australian Government as part of the Supporting Children with Life Threatening Medical Conditions and their Families 2019 election commitment. Palliative Care Australia is pleased to be working closely with Paediatric Palliative Care Australia and New Zealand (PaPCANZ) to deliver the project.
This exciting three-year project commenced in July 2020.
The project objectives
The Paediatric Palliative Care National Action Plan project represents a unique opportunity to support health professionals to respond to the specialist needs of children with life limiting conditions. The project will also address the needs of parents and carers seeking assistance to care for a child with high medical needs and life limiting conditions.
The objectives of the project are:
- To increase knowledge of where the gaps are in adequate paediatric palliative care services and where services are needed
- To improve support and information resources for parents and children with a life limiting condition, workforce in hospitals, high care and palliative care providers, and
- To enhance practical assistance to children with high medical needs and life limiting conditions by coordinating a national approach.
The project addresses 10 key activities which include:
- Developing a National Action Plan
- Developing an online resource hub (website)
- Establishing a Paediatric Palliative Care Education Special Interest Group
- Providing information services for parents/carers and health professionals
- Undertaking research to provide a national snapshot of children with high medical needs and life limiting conditions
The first step in the project was to establish a Steering Committee which includes people with the capability and content knowledge to provide guidance, oversight and review the progress of the project. Information on Steering Committee members can be found here.
If you would like to learn more or get involved please contact Toni Rice, Paediatric Palliative Care Coordinator or Annette Vickery, Paediatric Palliative Care Officer on firstname.lastname@example.org.