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Paediatric Palliative Care National Action Plan Project

Introduction

The Paediatric Palliative Care National Action Plan project received grant funding from the Australian Government as part of the Supporting Children with Life Threatening Medical Conditions and their Families 2019 election commitment. Palliative Care Australia is pleased to be working closely with Paediatric Palliative Care Australia and New Zealand (PaPCANZ) to deliver the project.  

This exciting three-year project commenced in July 2020.

The project objectives

The Paediatric Palliative Care National Action Plan project represents a unique opportunity to support health professionals to respond to the specialist needs of children with life limiting conditions. The project will also address the needs of parents and carers seeking assistance to care for a child with high medical needs and life limiting conditions.

The objectives of the project are:

  • To increase knowledge of where the gaps are in adequate paediatric palliative care services and where services are needed
  • To improve support and information resources for parents and children with a life limiting condition, workforce in hospitals, high care and palliative care providers, and
  • To enhance practical assistance to children with high medical needs and life limiting conditions by coordinating a national approach.

The project addresses 10 key activities which include:

  • Developing a National Action Plan
  • Developing an online resource hub (website)
  • Establishing a Paediatric Palliative Care Education Special Interest Group
  • Providing information services for parents/carers and health professionals
  • Undertaking research to provide a national snapshot of children with high medical needs and life limiting conditions

 

Paediatric Palliative Care Consumers and Health Professionals

We need your help to improve palliative care for infants, children and young people and their families. Your experiences are the best evidence we will have to drive improvement in the quality of, and access to, palliative care throughout Australia.

Consumers

More information for Consumers and how you can be involved in the Project can be found here

Health Professionals

More information for Health Professionals and how you can be involved in the Project can be found here.

 

Paediatric Palliative Care National Action Plan Project Background Literature Review

The Paediatric Palliative Care National Action Plan Project (Project) team is excited to announce that the Paediatric Palliative Care Literature Review is now complete.

The Literature Review will be used as the basis of a Discussion Paper to guide consultations with health professionals and consumers in the coming months.

We encourage you to take the time to read the Literature Review here.

 

 

Project governance

The first step in the project was to establish a Steering Committee which includes people with the capability and content knowledge to provide guidance, oversight and review the progress of the project. Information on Steering Committee members can be found here.

About the project logo

Early in the project we learnt that everyone involved in providing care and support to infants’ children, young people and their families are passionate, compassionate and committed professionals. This was a driving force in the development of the new project logo.

After careful consideration, a new logo has been selected by the Project Steering Committee.

Project Steering Committee consumer representative Simon Waring says, “The logo chosen is clean, not age-specific and most importantly, symbolises a circle of support and comfort for the journey of palliative care.”

The project team agrees and hopes that the logo will serve as a reminder of the many people who are working hard to support health professionals in delivering the best paediatric palliative care experience possible.

The project team would like to thank Laura Hare for the generous offer of her artwork, “Singing Flowers” in our initial marketing efforts of the Paediatric Palliative Care National Action Plan Project.

Further information

Keep up to date with the Paediatric Palliative Care Project through the PCA websiteTwitter or Facebook

If you would like to learn more or get involved with the Project please contact Toni Rice, Paediatric Palliative Care Project Coordinator or Annette Vickery, Paediatric Palliative Care Project Officer on paediatrics@palliativecare.org.au. 

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