Looking after yourself while caring for your child
Everyone has their own way of coping. This is influenced by your life experiences, support network and your child’s illness. You do not have to manage everything on your own. Spending time with others, participating in activities and communicating your individual needs to your family and friends is important.
Caring for yourself
Coping or survival strategies help us get through difficult situations. Every person will have, or develop, their own coping strategies. Finding out that your child has a life-limiting illness, combined with the task of caring for them, is a difficult situation for everyone involved.
Looking after yourself can be hard, however it’s important. Taking time to look after your own needs can give you more energy, capacity and reserve to care for your sick child and your family. Caring for yourself helps stress and avoid illness.
There are many reasons parents don’t seek help for themselves. Some of these reasons may include feeling that their child’s needs are more important than their own, their care team is too busy, distrust in another carer or simply wanting to stay close to their child.
Tips for caring for yourself
Each person has their own way of coping when they are going through a difficult situation. Below are some general coping strategies that may help you maintain a level of energy and resilience.
- Accept help from others — talk with people who are willing to help you, trust them to do some practical things to take the load off you. Keep a list of people and things they can do. Some examples of things friends could assist with include washing clothes, gardening, grocery shopping, meal preparation or running errands. Accepting offers of help is a good way to keep connected with your support network while reducing your stress.
- Find outlets for your feelings, such as physical activity, music or gardening.
- Eat well and exercise regularly to maintain your energy. You can use simple stretching and relaxation guides or exercise videos if you don’t want to leave home.
- Get enough sleep. It is common for parents to have trouble sleeping but if you are finding it hard to sleep on a regular basis, speak to your doctor.
- If you are working, negotiate a flexible time schedule and workload with your employer.
- Make time to be with your partner. It’s important to support each other.
- Share your feelings. Join a support group, talk regularly with a friend, or write in a journal.
- Talk with your care team about respite options.
Useful resources for Ongoing/Palliative Care
Here for you: Things you might like to discuss with the palliative care team about care at the end of life (QUT resource booklet 2)
Here for you… things you might like to discuss with the palliative care team (QUT resource)
Helping your Partner
Everyone has their own way of coping. This is influenced by your life experiences, your support network and your child’s illness. Some people will find comfort in sharing their feelings, hopes, wishes and concerns. Others […]
Where will my child be cared for?
Children can be cared for in their home, in hospital, or sometimes in a hospice. While many families choose to remain at home, sometimes this can be difficult and additional medical support is necessary. It […]
Parents and their care team share the difficult task of making decisions and planning care for the child. These choices are different for every child and may need to be revised if your child’s condition […]
Care Team Contact List
Carer Symptom Management Plan
Supporting someone who is caring for a seriously ill child
When a family member or friend is caring for a seriously ill child, you may not know what to say or do. It can help if you reach out to the family as your desire […]
Parents often express concerns about how to talk to their children about the diagnosis of a life-limiting illness. While there are a number of things to think about when deciding how to discuss the diagnosis, […]
Spiritual, Religious and Cultural Wishes
This factsheet explains how spirituality, religion and cultural backgrounds can shape your family’s wishes. It aims to help give you the confidence to ask professionals to care for your child in accordance with your values […]