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From Palliative Care Australia Palliative Matters Stories about living, dying and Palliative Care

Carers

  1. We can’t build more hospitals

    7 November 2018

    Hospital substitution by the provision of palliative care in the home, in sub-acute services or hospices and in residential aged care is not only meeting the wants and desires of Australians, but it’s an economic no-brainer.

  2. Young carers need to take a breather

    18 October 2018

    My message to young carers is this — in caring for others, please don’t forget to care for yourself. It is easy to become so completely absorbed with your caring duties that you neglect your own health and wellbeing, lose contact with friends or let your career or study suffer.

  3. The woman turning children’s disabilities into super powers

    17 October 2018

    “Disability is not a deficit within the person, but shows up the deficits in our culture and society that does not fully accept, encourage and celebrate humanity, no matter what it looks like. The unique and distinctive abilities of this amazing group of children can act as an inspiration for all of us, to encourage each other.”

  4. Bear Cottage was our lifeline

    13 October 2018

    When Max was diagnosed with Batten Disease, we had no idea what his future held. All we knew was that our little boy was going to die.

  5. The strength of community

    12 September 2018

    We sometimes find ourselves on a long and difficult journey. Whether we are a patient, carer, family member or friend, illness takes a toll on everyone involved. Often people reach out to help us but often we don’t accept support, even when we need it. To help change this situation, Andrea Grindrod from La Trobe University is encouraging families and the community to work together.

  6. Lucinda Barry is Dying to Talk during DonateLife Week

    1 August 2018

    For many people in palliative care, tissue and organ donation (e.g. corneal donation) is still a possibility and should be discussed as part of end-of-life conversations. Chief Executive Officer of Organ and Tissue Authority, Lucinda Barry, took some time this week to speak with Palliative Matters to discuss some of her end-of-life wishes using the Dying to Talk Discussion Starter.

  7. Memories are timeless treasures of the heart

    25 July 2018

    I witnessed an inspiring and heartfelt moment as day resident, Larry Andrews, walked into the community hall at Villaggio Sant’ Antonio aged care facility and was hailed by friends, family, former work colleagues and other fellow residents. There was a standing ovation as Larry entered and made his way to the front of the room in awe of all the people that had come to see him.

  8. Why Opioid Medicines are Important for Improving Quality of Life in Palliative Care

    18 July 2018

    With more understanding of how to manage pain using opioid medicines, the palliative care community can set an example for the rest of Australia to follow. Opioid medicines will always carry a risk of side effects and other issues – but by using a balanced approach, we can choose to manage that risk carefully, holistically, and with greater compassion.

  9. Last Wishes – The Afterlife Organiser

    2 July 2018

    Last Wishes, founded and created by Felicity Wegemund, was released earlier this year as an afterlife organiser for individuals to record their end-of-life and after death wishes all in one place. The mobile application can store information to help loved ones make decisions on an individual’s behalf by recording wishes for possessions, preferred funeral arrangements, documentations and any other desired requests.

  10. With the end in mind – Dying, Death and Wisdom in an Age of Denial

    24 May 2018

    With the End in Mind, written by renowned UK palliative care specialist Kathryn Mannix, is the exploration of one of the biggest taboos in our society and the only certainty we all share: death. Told through a series of powerful stories taken from Kathryn’s clinical practice, interwoven with her own professional journey, this extraordinary book sends a vital message to the living and answers the most urgent, intimate and fascinating questions about the end-of-life process with touching honesty and humility.


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