From Palliative Care Australia Stories about living, dying and Palliative Care
11 July 2018
This NAIDOC week, Sarah answers questions from the Dying to Talk Aboriginal and Torres Strait Islander Discussion Starter which aims to assist Aboriginal and Torres Strait Islander people to start thinking about what would happen if they were so sick that someone else had to make decisions for them.
2 July 2018
Last Wishes, founded and created by Felicity Wegemund, was released earlier this year as an afterlife organiser for individuals to record their end-of-life and after death wishes all in one place. The mobile application can store information to help loved ones make decisions on an individual’s behalf by recording wishes for possessions, preferred funeral arrangements, documentations and any other desired requests.
24 May 2018
With the End in Mind, written by renowned UK palliative care specialist Kathryn Mannix, is the exploration of one of the biggest taboos in our society and the only certainty we all share: death. Told through a series of powerful stories taken from Kathryn’s clinical practice, interwoven with her own professional journey, this extraordinary book sends a vital message to the living and answers the most urgent, intimate and fascinating questions about the end-of-life process with touching honesty and humility.
24 May 2018
The author of ‘With the end in mind’,Kathryn Mannex, has chosen the following excerpts for Palliative Matters readers to enjoy.
23 May 2018
Ian Venamore used to describe himself as a very active person. He enjoyed outdoor activities, playing sport and was quite the handy man around the house. It was in 2003 when he began to experience subtle symptoms which belied the seriousness of the condition he now lives with. Ian was diagnosed with Chronic Obstructive Pulmonary Disease (COPD) which is a progressive disease of the lungs causing shortness of breath. Ian shares his personal journey with COPD as he discovers the importance of knowing your body and understanding the limits of your condition and health needs.
22 May 2018
Volunteer Maddie spends quality time with Marco, who has a rare genetic condition, and his younger brother Lucas, improving life for the whole family. Marco is 13 years-old and lives with a very rare, life-threatening condition that has resulted in severe epilepsy and an intellectual disability.
21 May 2018
As a practising intensive care specialist for over 21 years, I have had the privilege to be with many patients and families at one of the toughest times in their lives. Tough for multiple reasons not least someone’s life has just been placed on a knife edge within the confines of a noisy, frenetic intensive care unit. This experience can be terrifying, confusing, bewildering with a strong sense of losing control over decisions including life and death.
17 May 2018
Molly Carlile AM is a multi-award winning death and grief specialist, palliative care activist, author and is the CEO of Palliative Care South East in Victoria. Read her special column about ‘what matters most?’ to celebrate National Palliative Care Week.
12 May 2018
Not all of us will be able to celebrate Mother’s Day in the way we wish we could. Some people will experience the day without their mum or child for the first time and others will struggle through the day like they have for many years. While the day will bring different emotions for each individual, it is important to grieve your loss and take the time to cherish the memories.
11 May 2018
International Nurses Day (Saturday 12 May) recognises the vital role nurses play in the delivery of high quality care to all patients and their families. The theme for this year, ‘Nurses a voice to lead – health is a human right’, empowers nurses to lead by example to influence health policy, planning, and provision. Palliative Matters sat down with Kate to discuss her career and the importance of recognising and celebrating International Nurses Day.
- Frail elderly put new pressure on prisons to provide palliative care
- One third of elderly patients receive futile treatment before they die
- Symbolic works created with ink-filled syringe capture life and offer therapy
- The most intimate thing I’ve done in my life: Kylie’s story
- Vicarious trauma: a young nurse shares her experience