Australian Capital Territory
While the Australian Capital Territory does not have a dedicated paediatric palliative care service, their palliative care services provide care and support for people of all ages. Children and families requiring specialist paediatric palliative care services may be referred to the Sydney Children’s Hospital, Randwick or The Children’s Hospital at Westmead, Sydney.
New South Wales
The Sydney Children’s Hospital Network Department of Palliative Care – Sydney, NSW
- The Children’s Hospital at Westmead
- Sydney Children’s Hospital, Randwick
- Bear Cottage Children’s Hospice Manly
The Department of Palliative Care at The Sydney Children’s Hospital Network (SCHN) provides compassionate care to children with life limiting illness and their families.
The Children’s Hospital at Westmead (CHW) and Sydeny Children’s Hospital (SCH) Randwick
CHW & SCH have a team of specialist doctors, nurses and allied health professionals providing consultative services and working alongside the primary medical team caring for a child and family throughout an illness.
Patients and families are supported to ensure they have the best quality of life as possible by facilitating the following palliative care interventions:
- Offering advice and support for complex symptom management
- Ensuring each child and familiy receives an individualised care and management plan
- Psychosocial support is availabe for all members of the family (including sibling support)
- Care coordination across the hospital and local community
- Family support so that care is available in hospital, home or hospice
- End of life care
- Bereavement support
Bear Cottage – Sydney, NSW
Is the only children’s hospice in NSW that is dedicated to caring for children with life-limiting conditions. Its vision is to be as far removed from a hospital environment as possible. It is set up to provide excellence in paediatric palliative care 24 hours a day, and their affiliation to the Sydney Children’s Hospital means they have access to specialist medical resources.
John Hunter Children’s Hospital – Newcastle, NSW
The paediatric palliative care service at the John Hunter Children’s Hospital provides support to children and young people from the Hunter, New England or North Coast regions with life-threatening or life-limiting illness. The service also aims to provide education, advice and support to health care professionals providing care to these young patients.
While the North Territory does not have a dedicated paediatric palliative care service, their palliative care services provide care and support for people of all ages. Children and families requiring specialist paediatric palliative care services may be referred to the Women’s and Children’s Hospital, Adelaide.
Lady Cilento Children’s Hospital – Brisbane, QLD
Lady Cilento Children’s Hospital provide support to families (including siblings) of children with a life-limiting illness. Palliative care can be provided in a number of places including the home, children’s hospital, local hospital and hospice. Their services include:
- Managing pain and symptoms
- Care coordination
- Home visits – School visits
- Referral to additional specialists
- Links to community support services
- Assistance with equipment needs
- Telehealth phone calls and video conferences
- Practical and emotional support
- Pastoral care
- Bereavement support.
Hummingbird House – Brisbane, QLD
Hummingbird House delivers best practice paediatric palliative care for children affected by life-limiting conditions, and their families. It provides access to short break stays, family support services, creative therapies, and care at the end of life. Hummingbird House works to meet the needs of each individual child and their family.
Hummingbird House is a medically supported home away from home, where kids can be kids, families can reconnect, and memories can be created to last a lifetime.
Women’s and Children’s Hospital – Adelaide, SA
The Paediatric Palliative Care Service is based at Women’s and Children’s Hospital in Adelaide and covers SA and NT, and provides:
- Clinical and consultative services
- Coordination of general practitioners and health care agencies in the community
- Support for staff in hospital medical units, metropolitan and regional health service centres
- Coordination of services and case management
- Education in the specialty of paediatric palliative care.
Their Vision: Helping children and families live life to the max
Referrals are accepted from health care professionals across the care spectrum. Families may also self-refer, with subsequent contact made with treating teams
While Tasmania does not have a dedicated paediatric palliative care service, their palliative care services provide care and support for people of all ages. Children and families requiring specialist paediatric palliative care services may be referred to The Royal Children’s Hospital Melbourne.
The Royal Children’s Hospital Melbourne – Melbourne, VIC
The Royal Children’s Hospital (RCH) runs a consultation-liaison team responsible for the care of children with palliative care needs and their families. The Victorian Paediatric Palliative Care Program is a partnership between the RCH, Monash Children’s Hospital and Very Special Kids. The team has specialist doctors, nurses and a social worker and occupational therapist who work closely with each of the member organisations to identify children, coordinate care and provide appropriate advice of patient management. Educational activities for staff from both hospital and community agencies are also offered.
The program is not restricted to children with cancer and available to the family of any child with a life-threatening or life-limiting illness. The team does not provide direct patient care. Rather, team members facilitate better communication between tertiary institutions and care providers in the community allowing more children to be cared for at home by palliative care agencies and other services. Phone advice is available to clinicians 24/7.
Very Special Kids – Melbourne, VIC
Very Special Kids is a specialist paediatric palliative care service that helps families across Victoria who have a child with a life-limiting illness with ongoing support from diagnosis all the way through to bereavement.
The free-of-charge family support services include counselling, advocacy, sibling support, bereavement support, networking and peer activities, trained family volunteers and specialist nursing care at Very Special Kids Hospice.
Very Special Kids Hospice is the only children’s hospice in Victoria and offers families access to planned and emergency respite, as well as end-of-life care. The hospice provides 24-hour medical and nursing care in a warm and welcoming environment.
Princess Margaret Hospital – Perth, WA
Princess Margaret Hospital for Children in Perth provides support to children and young people from across Western Australia with a life-limiting illness. Patients and their families benefit from care coordination, expert symptom management and ongoing supports. The statewide services aim to provide education, advice and support to health care professionals providing care to these young patients.
Children diagnosed with cancer are cared for within the oncology multidisciplinary team who ensure a statewide continuum of care from diagnosis and throughout treatment. Families benefit from expert care, case management and access to all national initives to ensure all patients have the best quality of life possible.
Children with non-cancer diagnoses are able to access the consultative service provided by the non-oncology palliative care service who work with the primary teams to ensure provision of best care to children with complex life-limiting illnesses.