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From Palliative Care Australia Palliative Matters Stories about living, dying and Palliative Care

Volunteers

  1. The strength of community

    12 September 2018

    We sometimes find ourselves on a long and difficult journey. Whether we are a patient, carer, family member or friend, illness takes a toll on everyone involved. Often people reach out to help us but often we don’t accept support, even when we need it. To help change this situation, Andrea Grindrod from La Trobe University is encouraging families and the community to work together.

  2. 17 year old student undertakes research to understand the Australian palliative care system

    30 August 2018

    Nearly every day we are confronted with death. We experience it personally, hear about it on the news, watch it in the movies and read about it in books and yet still, talking about death and dying with our loved ones remains a taboo subject. Conversely for 17 year old school student, Jemma Schusterbauer, personal experiences has made her eager to learn more about the end-of-life and understand the palliative care sector – an area she once found very confronting.

  3. Lucinda Barry is Dying to Talk during DonateLife Week

    1 August 2018

    For many people in palliative care, tissue and organ donation (e.g. corneal donation) is still a possibility and should be discussed as part of end-of-life conversations. Chief Executive Officer of Organ and Tissue Authority, Lucinda Barry, took some time this week to speak with Palliative Matters to discuss some of her end-of-life wishes using the Dying to Talk Discussion Starter.

  4. Memories are timeless treasures of the heart

    25 July 2018

    I witnessed an inspiring and heartfelt moment as day resident, Larry Andrews, walked into the community hall at Villaggio Sant’ Antonio aged care facility and was hailed by friends, family, former work colleagues and other fellow residents. There was a standing ovation as Larry entered and made his way to the front of the room in awe of all the people that had come to see him.

  5. Sarah Richards of Marrawuy Journeys is Dying to Talk

    11 July 2018

    This NAIDOC week, Sarah answers questions from the Dying to Talk Aboriginal and Torres Strait Islander Discussion Starter which aims to assist Aboriginal and Torres Strait Islander people to start thinking about what would happen if they were so sick that someone else had to make decisions for them.

  6. Last Wishes – The Afterlife Organiser

    2 July 2018

    Last Wishes, founded and created by Felicity Wegemund, was released earlier this year as an afterlife organiser for individuals to record their end-of-life and after death wishes all in one place. The mobile application can store information to help loved ones make decisions on an individual’s behalf by recording wishes for possessions, preferred funeral arrangements, documentations and any other desired requests.

  7. With the end in mind – Dying, Death and Wisdom in an Age of Denial

    24 May 2018

    With the End in Mind, written by renowned UK palliative care specialist Kathryn Mannix, is the exploration of one of the biggest taboos in our society and the only certainty we all share: death. Told through a series of powerful stories taken from Kathryn’s clinical practice, interwoven with her own professional journey, this extraordinary book sends a vital message to the living and answers the most urgent, intimate and fascinating questions about the end-of-life process with touching honesty and humility.

  8. With the end in mind – Palliative Matters readers treated to excerpts from the book.

    24 May 2018

    The author of ‘With the end in mind’,Kathryn Mannex, has chosen the following excerpts for Palliative Matters readers to enjoy.

  9. Maddie is part of our family

    22 May 2018

    Volunteer Maddie spends quality time with Marco, who has a rare genetic condition, and his younger brother Lucas, improving life for the whole family. Marco is 13 years-old and lives with a very rare, life-threatening condition that has resulted in severe epilepsy and an intellectual disability.

  10. Is there such a thing as Person Centred Care?

    17 May 2018

    Molly Carlile AM is a multi-award winning death and grief specialist, palliative care activist, author and is the CEO of Palliative Care South East in Victoria. Read her special column about ‘what matters most?’ to celebrate National Palliative Care Week.


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