From Palliative Care Australia Stories about living, dying and Palliative Care
13 October 2018
When Max was diagnosed with Batten Disease, we had no idea what his future held. All we knew was that our little boy was going to die.
12 September 2018
We sometimes find ourselves on a long and difficult journey. Whether we are a patient, carer, family member or friend, illness takes a toll on everyone involved. Often people reach out to help us but often we don’t accept support, even when we need it. To help change this situation, Andrea Grindrod from La Trobe University is encouraging families and the community to work together.
1 August 2018
For many people in palliative care, tissue and organ donation (e.g. corneal donation) is still a possibility and should be discussed as part of end-of-life conversations. Chief Executive Officer of Organ and Tissue Authority, Lucinda Barry, took some time this week to speak with Palliative Matters to discuss some of her end-of-life wishes using the Dying to Talk Discussion Starter.
25 July 2018
I witnessed an inspiring and heartfelt moment as day resident, Larry Andrews, walked into the community hall at Villaggio Sant’ Antonio aged care facility and was hailed by friends, family, former work colleagues and other fellow residents. There was a standing ovation as Larry entered and made his way to the front of the room in awe of all the people that had come to see him.
18 July 2018
With more understanding of how to manage pain using opioid medicines, the palliative care community can set an example for the rest of Australia to follow. Opioid medicines will always carry a risk of side effects and other issues – but by using a balanced approach, we can choose to manage that risk carefully, holistically, and with greater compassion.
2 July 2018
Last Wishes, founded and created by Felicity Wegemund, was released earlier this year as an afterlife organiser for individuals to record their end-of-life and after death wishes all in one place. The mobile application can store information to help loved ones make decisions on an individual’s behalf by recording wishes for possessions, preferred funeral arrangements, documentations and any other desired requests.
24 May 2018
With the End in Mind, written by renowned UK palliative care specialist Kathryn Mannix, is the exploration of one of the biggest taboos in our society and the only certainty we all share: death. Told through a series of powerful stories taken from Kathryn’s clinical practice, interwoven with her own professional journey, this extraordinary book sends a vital message to the living and answers the most urgent, intimate and fascinating questions about the end-of-life process with touching honesty and humility.
24 May 2018
The author of ‘With the end in mind’,Kathryn Mannex, has chosen the following excerpts for Palliative Matters readers to enjoy.
23 May 2018
Ian Venamore used to describe himself as a very active person. He enjoyed outdoor activities, playing sport and was quite the handy man around the house. It was in 2003 when he began to experience subtle symptoms which belied the seriousness of the condition he now lives with. Ian was diagnosed with Chronic Obstructive Pulmonary Disease (COPD) which is a progressive disease of the lungs causing shortness of breath. Ian shares his personal journey with COPD as he discovers the importance of knowing your body and understanding the limits of your condition and health needs.
21 May 2018
As a practising intensive care specialist for over 21 years, I have had the privilege to be with many patients and families at one of the toughest times in their lives. Tough for multiple reasons not least someone’s life has just been placed on a knife edge within the confines of a noisy, frenetic intensive care unit. This experience can be terrifying, confusing, bewildering with a strong sense of losing control over decisions including life and death.
- Frail elderly put new pressure on prisons to provide palliative care
- One third of elderly patients receive futile treatment before they die
- Symbolic works created with ink-filled syringe capture life and offer therapy
- The most intimate thing I’ve done in my life: Kylie’s story
- Vicarious trauma: a young nurse shares her experience