Artwork by Nicholas, 7 years old
‘Handpainted chooks outside the chook-house’

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Useful resources for Ongoing/Palliative Care

Helping your Partner

Everyone has their own way of coping. This is influenced by your life experiences, your support network and your child’s illness. Some people will find comfort in sharing their feelings, hopes, wishes and concerns. Others […]

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Looking after yourself while caring for your child

Everyone has their own way of coping. This is influenced by your life experiences, support network and your child’s illness. You do not have to manage everything on your own. Spending time with others, participating […]

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Where will my child be cared for?

Children can be cared for in their home, in hospital, or sometimes in a hospice. While many families choose to remain at home, sometimes this can be difficult and additional medical support is necessary. It […]

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Decision Making

Parents and their care team share the difficult task of making decisions and planning care for the child. These choices are different for every child and may need to be revised if your child’s condition […]

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Carer Symptom Management Plan

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Supporting someone who is caring for a seriously ill child

When a family member or friend is caring for a seriously ill child, you may not know what to say or do. It can help if you reach out to the family as your desire […]

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Sibling Support

Parents often express concerns about how to talk to their children about the diagnosis of a life-limiting illness. While there are a number of things to think about when deciding how to discuss the diagnosis, […]

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Spiritual, Religious and Cultural Wishes

This factsheet explains how spirituality, religion and cultural backgrounds can shape your family’s wishes. It aims to help give you the confidence to ask professionals to care for your child in accordance with your values […]

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Children’s Hospices in Australia

Children’s hospice services help children with life-limiting illnesses who are not expected to reach adulthood. The hospices assist these children and their families deal with the emotional and physical challenges they face and to make […]

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Finding Reliable Information

Educating yourself about your child’s illness is an important part of managing their care. Knowledge about what might happen and how to respond will also help you be more informed and give you a greater […]

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